Despite all the proven progress of contemporary medicine, some people are drawn to alternative or “holistic” cures and practices. Many of these do no harm. As one cancer specialist observed recently, people receiving cancer treatment will frequently try meditation or vitamins too. When such a practice is alongside, and not instead of, evidence-based treatment, this is usually not a concern. If it reduces distress, it can be beneficial.
But the proliferation of online health influencers presents problems that authorities and oversight bodies in many countries have not fully understood. A recent inquiry into one such business offering membership and advice to pregnant mothers has exposed numerous cases of late-term stillbirths or other serious harm involving mothers or birth attendants associated with it. While the entity is based in North Carolina, its reach is global.
“Across whole populations, going through labour and birth without professional support is linked to higher levels of risk for mother and baby,” as stated by a expert of midwifery.
Childbirth without medical assistance, known as free birth, is legal in nations including the UK and US. The potential dangers are poorly documented due to a absence of reliable information. Childbirth can be a frightening experience, and excellent care is far from guaranteed. In England, a alarming recent report found two-thirds of maternity units to be unsafe or in need of improvement.
Criticisms of medical systems and particular, persistent issues with maternity care are in many cases justified. A significant number of the women spoken to for the investigation had previously undergone traumatic births.
But while distrust of institutions may be rooted in experience, it has also become a breeding ground for other influencers seeking converts to their unorthodox methods and DIY ethos. During the pandemic, a “well-being” industry ostensibly focused on healthy living was involved in disseminating lies about vaccines and fuelling paranoia about official advice.
Worry is rising that such beliefs are gaining more widespread traction. One presentation given at a cancer conference focused on misinformation, which it said had “significantly deteriorated in the past decade”. This investigation shows that behind the facade of an rebellious sisterhood lies an operation that trains women as social media influencers as well as birth attendants. The organization does not present itself to be a qualified medical provider.
There is no going back to a time when doctors were presumed to know best. Vast quantities of scientific research are published online and many people use these to beneficial effect. But there is also a critical necessity for protections from dangerous advice. It is widely understood that the algorithms used by tech companies reward more extreme content.
In the UK, necessary reforms to maternity services cannot come soon enough. They must include the choice of home birth and the availability of data to support women in choosing their care. Ministers and organizations such as the World Health Organization should also develop plans for the online information landscape so that evidence-based healthcare is not compromised.
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